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Pain That Cannot Be Measured
What 43 Years of Sickle Cell Has Taught Me About Who Gets Believed
Dr. Dédé Tetsubayashi|1 min read|May 16, 2026
Chronic Pain & System Failure
Vaso-occlusive crisis. Inadequate treatment. Racial pain bias. And the uncomfortable reality that gene therapy is not simply a medical breakthrough, but also a reflection of how profoundly existing systems have failed people living with sickle cell disease long before this moment arrived.
Las…
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